Information about the data controller (Patiro)
Health Panel is owned and operated by:
(Hereinafter referred to as Patiro)
The process for a new medicament is very complex and time consuming. Only 10 out of 10.000 ideas are tested on people, and only 1 out of 10 products are approved and sold afterwards. Development usually takes 10 to 13 years, from the initial work in the laboratories, until the products are finally launched.
When it comes to developing new medicine, participants for research projects are often few in numbers and difficult to find. Therefore, patient recruitment can be very time consuming, which means that ill patients must wait to receive treatment.
Our goal is to improve health and to develop new treatments by connecting patients and researchers.
We collect personal health related data from our members to help develop new treatments and potentially help our members improve their own health as well.
The purpose of our collection of data and the processing of your personal information is solely to improve health, and your personal data will only be used for this purpose. By signing up for Patiro’s database, found on our Health Panel website, you give Patiro permission to collect, store, systematise and pass on both your contact and health information to scientific institutions (private and public institutions with ongoing research projects, which are always approved by:
- EU: Research Ethics Committees (RECs)
- USA: Institutional Review Boards (IRB)
- Canada: Health Canada's Research Ethics Board (REB)
as well as by the respective Data Protection Agency.
By creating a profile, you consent to scientific institutions contacting you regarding health-related questions and participation in research projects - e.g. answering a questionnaire, participating in an interview or an additional/different study.
Patiro has the right to delete any profile at any given time - e.g. upon your request, or if false information is entered in the database. If your profile is deleted, all data will be deleted permanently.
By signing up for the database, you consent to Patiro sending you health related e-mails. We strive to limit the amount of e-mails being sent out to our members. If you no longer wish to receive health related e-mails you can unsubscribe from the service at any time.
All profiles must be updated at least once every 5 years. If 5 years have passed, and the profile has not been updated, an e-mail, reminding you to update your profile, will be sent to you. If your profile has not been updated within a time span of two weeks after receiving the e-mail, the profile will be permanently deleted. If changes in the Terms and Conditions occur, you will receive e-mails containing these changes. Afterwards, you have the choice to either delete your profile or to accept the changes in the Terms and Conditions, thereby preserving your profile.
You always have the option to refuse to participate in a research project. When signing up and creating your health profile, you verify the accuracy of your information. The storage of your personal information in Patiro’s database, and the transmission from the database is encrypted.
The EU, USA, and Canada have established institutions and regulations ensuring that your data is handled safely, when your personal information is being stored and processed by Patiro. You can contact Patiro if you are interested in the storage and processing of your personal information, or to have false information deleted.
You always have the option of contacting Patiro and withdraw your consent of Patiro’s storage and processing of your personal data. If you withdraw your consent, Patiro will not store or process your information anymore.
For more information, visit:
- UK: Information Commissioner's Office (ICO)
- USA: the Federal Trade Commission (FTC)
- Canada: Office of the Privacy Commissioner of Canada